For the first time, Colin Farrell has opened up his home and talked in-depth about life with his son James, who has Angelman syndrome. James was just a toddler when he was diagnosed with the rare ...

International Angelman Day also marks the birthday of Dr. Harry Angelman, the British pediatrician who first identified the ...

Colin Farrell says there are too few resources for young adults with Angelman syndrome, creating a gap in caregiving for families. (Joe Maher/BAFTA/Getty Images) Colin Farrell’s message about his son ...

Henry Edberg dug through the play kitchen at his home in Rosemount before serving up the daily special to his older brother. “Vegetables are healthy, so I’m giving you the vegetables,” Henry, 3, told ...

Ultragenyx Pharmaceutical (RARE) remains a Sell after its Phase 3 OI program failed to meet primary fracture reduction ...

Colin Farrel has launched a new foundation that will support adult children who have intellectual disabilities, as he opened up about his son James Farrell for the first time. The Banshees of ...

Recently Irish actor Colin Farrell was on the Ellen Degeneres show to promote the release of his latest movie, Fright Night. During the interview, Farrell spoke about his 7-year-old son James, who has ...

With a pair of Phase III trial flops, Ultragenyx will explore cost reductions as analysts turn attention to an upcoming ...

Ultragenyx Pharmaceuticals reported Phase 3 results for setrusumab, a potential treatment for osteogenesis imperfecta.

Shari Blum first heard about the rare neuro-genetic disorder Angelman syndrome when her daughter Elizabeth was 13 months old. The syndrone’s symptoms often include balance issues, gross and fine motor ...

This post was updated on April 24, 2019 to incorporate feedback from parents. Names have been changed to protect anonymity. Is this child happy? Source: Joel Frohlich (AI generated with Midjourney) ...